About

 

Living With FASD 2014 Summit: Building a Bridge to Adulthood

25+ hours of online training for families & professionals living and working with those with Fetal Alcohol Spectrum Disorder (FASD)

September 9th – 20th, 2014

The purpose of this annual Summit is to provide families and professionals with the most up-to-date training, based on the newest research on Fetal Alcohol Spectrum Disorder (FASD).

You are a:

PARENT (biological, foster, step, adoptive, grand, etc.) whose's hungry to connect with other parents and hear about strategies from experts, especially those who have raised children with FASD? Yet can’t afford the time away from home or the cost of travel and hotel to attend conferences on FASD?

PROFESSIONAL who'd like FASD-specific training to help support those you work with who have FASD.

 

The Living With FASD 2014 Summit may be exactly what you’ve been looking for!

 

This year’s theme is “Building A Bridge to Adulthood”. An overarching principle is how the dysmaturity typical in FASD plays such an important role in the transition to adulthood for those (and their families) with FASD. Seven training themes speakers will be addressing:

  • Interdependent vs. Independent Living
  • Vocation and Employment
  • Diagnosis and Research
  • Mental Health
  • Substance Use and Treatment
  • Legal Issues
  • Sex

 

Summit Participants Are Saying:

  • This teleseminar is EXCELLENT! I can’t wait to listen to more. I want you to know that you have organized a most valuable support for FASD parents. I have never gone to an FASD conference before. I always wished I could hear the guest speakers from the comfort of my own home. You have solved this conundrum. I can actually be in my own home, keeping an eye on my alcohol affected son, and feel reassured there are people out there that understand and “get it”. Thank you most sincerely.

    Nancy -

  • I would just like to express me warmest appreciation for the tele-summit you organized. I am learning so much! I am an Occupational Therapist working on a FASD prevention project in a small community in the middle of South Africa. I do plenty of training similar to Kim Barthel and found it so refreshing to hear her present the same information in a somewhat different way. All your other speakers have been very informative and will help me tremendously in my work. I really appreciate having access to this high quality training. Training in an area this remote always comes at a greater cost as it includes accommodation and traveling, so it is a real privilege to have it at the tips of my fingers. Thank you for taking the time and effort to put this together not only for my own enrichment but also for all our clients!

    Lian-Marie - Foundation For Alcohol Related Research, South Africa

  • I bought the package so I can listen to the interviews several times… the best money I have ever spent!

    Tim - Vancouver, Canada

  • Until today, seriously David, my wife and I felt “really” alone in fighting with these so-called authorities (both agencies and government) because of THEIR lack of understanding of FASD and ALL the challenges that we as foster parents experience. With all my heart, I thank the LORD and you David and the FASD group that we are finally not alone after listening to the second talk of the day. Suddenly, it dawned on me, there is a group out there that I can work with… Triple blessings to you and your group.

    Dr. Winfield, PhD -

  • Thank you so much for this summit. For the first time I feel hope as I raise my daughter with FASD. Since the diagnosis of FASD, I’ve asked myself so many questions: We have the diagnosis, so now what? What does this mean for our family and for our daughter living with FASD through the years? It feels like we’re always reacting and treating symptoms. I worry that the social and educational gaps will widen as she gets older. Is there ways to close those gaps? I think the most helpful part of this summit is the real life examples and practical parenting tips given by the presenters.

    Julia - New Jersey, USA

  • You know the expression, “When the student is ready, the teacher will appear.” I have my computer running with the presentation, and my laptop running so I can type and take notes. I have ordered the package of transcripts, etc. I just want to say thank you. The information has been unbelievable, and sometimes it is reassuring when I hear that the professional experts don’t exactly agree.

    Elaine - North Bay, Canada

  • This series is amazing and informative. Thanks for thinking of it and making it happen

    Lynette - Saskatoon, Canada

  • This was AWESOME! Thank you! I will be getting in contact with Dr. Claire Coles to find out how I can be trained. Oregon has very few resources for families/individuals dealing with FAS/FASD. Thank you SO MUCH!

    Carol Anthony, LPC - Salem, Oregon

  • I want to express my heartfelt thanks to you and everyone who is involved in the FASD Summit Conference. Thank you for all the hard work that has gone into this. The biggest thing is that I can listen to it without charge [48 hour replay]. I’ve already listened to one speaker and want to listen to Dr. Rod Densmore and others.

    Kevin -

  • These interviews are so awesome and tremendously helpful. Where have you all been. You are all my angels and saviors.

    Kimberly - Corinth, Mississippi

  • I have just listened to the session with Kim Barthel, which was music to my ears and makes so much sense about my nieces sensory problems and how to work with her. I am finding this conference so helpful in my understanding of my niece where FAS has been ruled out. Many thanks for putting this conference together.

    Chamomile - England

  • Thank you Cheryl, you are doing a AWESOME job. The Summit is excellent, a lot of good information. Due to 48 hour REPLAY, a lot more people are getting this information. Thank YOU to everyone involved in this Summit and to the people who are sharing their stories on the “Living With FASD” Facebook group. You are ALL angels.

    Patsy - Labrador, Canada

  • I would like to add my accolades for this Summit. I don’t live with FASD, but am the center manager for a Head Start program and have worked in early childhood education for 25 years. Our program uses the PBIS (positive behavior interventions and supports) which focuses on building relationships, then teaching social skills, and then developing plans as needed. The information I got from Diane Malbin many years ago (thinking about the brain first) is a perfect fit with PBIS. The ideas and information presented throughout this Summit has given me updates on research, and some practical intervention strategies I can share with my teachers to help ALL children be more successful in the preschool classroom. The Summit has also given me ways to work with our families to help them advocate for their child. Thank you so much!

    Julie - Washington, USA

 

2014 Summit Program

Welcome & Finale

DATE/TIME CATEGORY SPEAKER WORKSHOP TITLE
Tue Sep 09, 2014
10:00 am - 11:00 am
PDT (Los Angeles)
David Gerry Special Welcome Event (2014 Summit) (Register)
Sat Sep 20, 2014
2:00 pm - 3:00 pm
PDT (Los Angeles)
David Gerry Summit Finale (2014 Summit) (Register)

 

Substance Use and Treatment

DATE/TIME CATEGORY SPEAKER WORKSHOP TITLE
Wed Sep 10, 2014
10:00 am - 11:00 am
PDT (Los Angeles)
Tim Windle Laying the Foundation for an FASD-Supported Substance Abuse Program (2014 Summit) (Register)
Fri Sep 12, 2014
10:00 am - 11:00 am
PDT (Los Angeles)
Diane Malbin, MSW Dysmaturity and FASD: Conditions for Health, Problem Prevention and Effective Addictions Treatment (2014 Summit) (Register)
Mon Sep 15, 2014
10:00 am - 11:00 am
PDT (Los Angeles)
Therese Grant, PhD Modifiying Addiction Treatment Programs to Support Those with FASD (2014 Summit) (Register)
Mon Sep 15, 2014 - Wed Sep 17, 2014
2:00 pm - 3:00 pm
PDT (Los Angeles)
Cynthia Moreno Tuohy, NCAC II, CCDC III, SAP Building the FASD Brain a Bridge to Healthier Relationships with Self and Others (2014 Summit) (Register)
Wed Sep 17, 2014
10:00 am - 11:00 am
PDT (Los Angeles)
Mary O’Connor, PhD, ABPP Project Step Up: Teaching Teens with FASD Strategies to Resist Alcohol Misuse (2014 Summit) (Register)
Sat Sep 20, 2014
10:00 am - 11:00 am
PDT (Los Angeles)
Joanne Weinberg, PhD The FASD Brain and Addictions: Lab Studies Find Paradoxes (2014 Summit) (Register)

 

Sex

DATE/TIME CATEGORY SPEAKER WORKSHOP TITLE
Thu Sep 11, 2014 - Fri Sep 12, 2014
10:00 am - 11:00 am
PDT (Los Angeles)
Natalie Novick Brown, PhD Sex Is NOT a Four-Letter Word: FASD and Sexuality (2014 Summit) (Register)
Fri Sep 19, 2014
10:00 am - 11:00 am
PDT (Los Angeles)
Yvonne Uzlot, RN Starting the Conversation: Sexual & Reproductive Health of Women With FASD (2014 Summit) (Register)

 

Challenging Behavior

DATE/TIME CATEGORY SPEAKER WORKSHOP TITLE
Sun Sep 14, 2014
2:00 pm - 3:00 pm
PDT (Los Angeles)
Nathan Ory, Psychologist TBA (2014 Summit) (Register)

 

Legal Issues

DATE/TIME CATEGORY SPEAKER WORKSHOP TITLE
Sun Sep 14, 2014
10:00 am - 11:00 am
PDT (Los Angeles)
Karen A. Steele, Esq/JD Reality-Based Hope for Those with FASD in the Criminal Justice System (2014 Summit) (Register)
Thu Sep 18, 2014
2:00 pm - 3:00 pm
PDT (Los Angeles)
Anthony P. Wartnik, Judge (Retired) Legal Land Mines Those with FASD are Exposed to from Birth to Adulthood (2014 Summit) (Register)

 

Interdependent vs. Independent Living

DATE/TIME CATEGORY SPEAKER WORKSHOP TITLE
Fri Sep 12, 2014 - Tue Sep 16, 2014
2:00 pm - 3:00 pm
PDT (Los Angeles)
Jodee Kulp FASD: Using "Live Abilities" to Promote Adult Success (2014 Summit) (Register)
Sat Sep 13, 2014
2:00 pm - 3:00 pm
PDT (Los Angeles)
Kee Warner Interdependence: Another Gift of FASD for the Health of Us All (2014 Summit) (Register)
Wed Sep 17, 2014 - Thu Sep 18, 2014
2:00 pm - 3:00 pm
PDT (Los Angeles)
Linda Perry Using Micro-Boards to Support Adults with FASD (2014 Summit) (Register)
Thu Sep 18, 2014
10:00 am - 11:00 am
PDT (Los Angeles)
Heather Carmichael Olson, PhD Independence vs. Interdependence: Finding the Balance for those with FASD (2014 Summit) (Register)
Fri Sep 19, 2014
2:00 pm - 3:00 pm
PDT (Los Angeles)
RJ Formanek Learning to Fly: FASD and Transitioning to the Adult Years (2014 Summit) (Register)

 

Mental Health

DATE/TIME CATEGORY SPEAKER WORKSHOP TITLE
Thu Sep 11, 2014
2:00 pm - 3:00 pm
PDT (Los Angeles)
Nathan Ory, Psychologist For Those With FASD, Who is Responsible for "Responsible Behavior"? (2014 Summit) (Register)
Fri Sep 12, 2014
10:00 am - 11:00 am
PDT (Los Angeles)
Diane Malbin, MSW Dysmaturity and FASD: Conditions for Health, Problem Prevention and Effective Addictions Treatment (2014 Summit) (Register)

 

Vocation and Employment

DATE/TIME CATEGORY SPEAKER WORKSHOP TITLE
Sat Sep 13, 2014
10:00 am - 11:00 am
PDT (Los Angeles)
Georgiana Wilton, PhD Work Place Success: Tips and Tools to Successfully Support Individuals with FASD (2014 Summit) (Register)
Fri Sep 19, 2014
2:00 pm - 3:00 pm
PDT (Los Angeles)
RJ Formanek Learning to Fly: FASD and Transitioning to the Adult Years (2014 Summit) (Register)

 

Research

DATE/TIME CATEGORY SPEAKER WORKSHOP TITLE
Tue Sep 09, 2014
2:00 pm - 3:00 pm
PDT (Los Angeles)
Edward P. Riley, PhD Nearly Normal Brain Development Can Occur in Adults With FASD? (2014 Summit) (Register)
Wed Sep 10, 2014
2:00 pm - 3:00 pm
PDT (Los Angeles)
Rod Densmore, MD A Primer on Care of Patients who Have FASD for Health Professionals (2014 Summit) (Register)
Tue Sep 16, 2014
10:00 am - 11:00 am
PDT (Los Angeles)
Diane Russell, PhD FASD: Why Adaptive Functioning is so much more Important Than IQ (2014 Summit) (Register)
Tue Sep 16, 2014
2:00 pm - 3:00 pm
PDT (Los Angeles)
Dorothy Badry, PhD FASD Education—Who, What , Where, When, and Why (2014 Summit) (Register)

 

LIVE Question & Answer Sessions

No Events

FASD Quotes

  • FASD is what I have. It’s not who I am!

    Anonymous -

  • Mummy, at school, if I don’t learn the way they teach, why don’t they teach the way I learn?

    Charles, Age 9 -

  • After I told my daughter, “Keep your eyes peeled,” while we were driving to look for an address, she answered, “Mom, that would hurt!”

    Anonymous -

  • “You told me to brush my teeth, not to use toothpaste.”

    Anonymous -

  • Mother’s question to a child with FAS: “Why do you always talk out loud when no one is in the room?” Son’s answer: “I’m telling the one side of my brain to tell the other side what to do.”

    Anonymous -

  • “I don’t know why I got in so much trouble at school. All I did was set off a loud, fake firecracker in chapel.” (age 7)

    Anonymous -

  • “I didn’t steal it. Johnny did. I just took it from Johnny’s room.”

    Anonymous -

  • “”But Mom, they must be ‘nice’ people. They have animals.”

    Anonymous -

  • “I didn’t spill the coke, mommie. The can spilled the coke.”

    Anonymous -

  • When told that most people think about what they are going to say before they say it my daughter replied, “No one can do that. That’s impossible!”

    Anonymous -

  • “I did not take your make-up! You abandoned it in the bathroom.”

    Anonymous -

 

 

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