Living With FASD 2013 Summit

An Online Resource for Families Living With Fetal Alcohol Spectrum Disorder

Are you a parent (biological, foster, step, adoptive, grand, etc.) living with someone who has Fetal Alcohol Spectrum Disorder (FASD)? Are you hungry to connect with other parents and hear about strategies from experts, especially those who have raised children with FASD? Yet can’t afford the time away from home or the cost of travel and hotel to attend conferences on FASD?
 
The Living With FASD 2013 Summit may be exactly what you’ve been looking for!
 
The purpose of this Summit is to provide families with information about practical strategies to implement at home, based on the newest FASD research. Speakers have been specially selected because they have experience on a professional level and also have first-hand experience raising children with FASD.
 
Discover the first-hand challenges our experts faced and the lessons they learned. Gain insight into the knowledge they gained, the resources they used, and techniques they developed. From this unique perspective, they can provide you insight on a range of topics.

Participants are saying:

  • This teleseminar is EXCELLENT! I can’t wait to listen to more. I want you to know that you have organized a most valuable support for FASD parents. I have never gone to an FASD conference before. I always wished I could hear the guest speakers from the comfort of my own home. You have solved this conundrum. I can actually be in my own home, keeping an eye on my alcohol affected son, and feel reassured there are people out there that understand and “get it”. Thank you most sincerely.

    Nancy -


  • I would just like to express me warmest appreciation for the tele-summit you organized. I am learning so much! I am an Occupational Therapist working on a FASD prevention project in a small community in the middle of South Africa. I do plenty of training similar to Kim Barthel and found it so refreshing to hear her present the same information in a somewhat different way. All your other speakers have been very informative and will help me tremendously in my work. I really appreciate having access to this high quality training. Training in an area this remote always comes at a greater cost as it includes accommodation and traveling, so it is a real privilege to have it at the tips of my fingers. Thank you for taking the time and effort to put this together not only for my own enrichment but also for all our clients!

    Lian-Marie - Foundation For Alcohol Related Research, South Africa

  • I bought the package so I can listen to the interviews several times… the best money I have ever spent!

    Tim - Vancouver, Canada

  • Until today, seriously David, my wife and I felt “really” alone in fighting with these so-called authorities (both agencies and government) because of THEIR lack of understanding of FASD and ALL the challenges that we as foster parents experience. With all my heart, I thank the LORD and you David and the FASD group that we are finally not alone after listening to the second talk of the day. Suddenly, it dawned on me, there is a group out there that I can work with… Triple blessings to you and your group.

    Dr. Winfield, PhD -


  • Thank you so much for this summit. For the first time I feel hope as I raise my daughter with FASD. Since the diagnosis of FASD, I’ve asked myself so many questions: We have the diagnosis, so now what? What does this mean for our family and for our daughter living with FASD through the years? It feels like we’re always reacting and treating symptoms. I worry that the social and educational gaps will widen as she gets older. Is there ways to close those gaps? I think the most helpful part of this summit is the real life examples and practical parenting tips given by the presenters.

    Julia - New Jersey, USA

  • You know the expression, “When the student is ready, the teacher will appear.” I have my computer running with the presentation, and my laptop running so I can type and take notes. I have ordered the package of transcripts, etc. I just want to say thank you. The information has been unbelievable, and sometimes it is reassuring when I hear that the professional experts don’t exactly agree.

    Elaine - North Bay, Canada

  • This series is amazing and informative. Thanks for thinking of it and making it happen

    Lynette - Saskatoon, Canada

  • This was AWESOME! Thank you! I will be getting in contact with Dr. Claire Coles to find out how I can be trained. Oregon has very few resources for families/individuals dealing with FAS/FASD. Thank you SO MUCH!

    Carol Anthony, LPC - Salem, Oregon

  • I want to express my heartfelt thanks to you and everyone who is involved in the FASD Summit Conference. Thank you for all the hard work that has gone into this. The biggest thing is that I can listen to it without charge [48 hour replay]. I’ve already listened to one speaker and want to listen to Dr. Rod Densmore and others.

    Kevin -

  • These interviews are so awesome and tremendously helpful. Where have you all been. You are all my angels and saviors.

    Kimberly - Corinth, Mississippi

  • I have just listened to the session with Kim Barthel, which was music to my ears and makes so much sense about my nieces sensory problems and how to work with her. I am finding this conference so helpful in my understanding of my niece where FAS has been ruled out. Many thanks for putting this conference together.

    Chamomile - England

  • Thank you Cheryl, you are doing a AWESOME job. The Summit is excellent, a lot of good information. Due to 48 hour REPLAY, a lot more people are getting this information. Thank YOU to everyone involved in this Summit and to the people who are sharing their stories on the “Living With FASD” Facebook group. You are ALL angels.

    Patsy - Labrador, Canada

  • I would like to add my accolades for this Summit. I don’t live with FASD, but am the center manager for a Head Start program and have worked in early childhood education for 25 years. Our program uses the PBIS (positive behavior interventions and supports) which focuses on building relationships, then teaching social skills, and then developing plans as needed. The information I got from Diane Malbin many years ago (thinking about the brain first) is a perfect fit with PBIS. The ideas and information presented throughout this Summit has given me updates on research, and some practical intervention strategies I can share with my teachers to help ALL children be more successful in the preschool classroom. The Summit has also given me ways to work with our families to help them advocate for their child. Thank you so much!

    Julie - Washington, USA

 

Special Welcome Event & Series Overview—David Gerry and Cheryl Sivertson

David Gerry david@LivingWithFASD.com +1 (250) 889-1429 Host of “Living With FASD” telesummit, Co-chair, Advisory Panel of HerWay Home, Former Executive Director of The FASD Community Circle

Listen to the REPLAY of the series “Welcome Event”:

A special welcome and introduction by David Gerry, host of this series. Cheryl Sivertson, his business partner and long time friend, will interview David. You will discover how David came to be a foster parent of two children with FASD and how this experience set him (and his wife Grace) on a new life-altering path.

Discover:

Gain an overview of what you'll experience in the series and how to prepare yourself to get the most out of it;

Strategies and tips David learned while parenting two children with FASD;

How David and his wife Grace went about lobbying, and ultimately creating, new government services for family's living with FASD;

The top five things every parent new to FASD must know;

Unanticipated gifts David received during the course of parenting.

Program & Speaker Topics

For comprehensive topic descriptions and schedules, check out the Program page (or check each speaker’s individual page).

 

 

 

 

Lenora Marcellus, PhD

Breaking the Cycle Begins with Respect: A Woman-Centered Approach to FASD Prevention
(69 mins and 30 min LIVE listener Q&A)

 

 

Diane Black, PhD

Nutrition for FASD
(75 mins and 30 min listener Q&A)

 

 

Claire D. Coles, PhD

Be the Solution: Interventions for FASD
(83 minutes)

 

 

10:00 am PDT—Rod Densmore, MD

FASD & Transcending Caregiver Stress—Part 1
(55 mins and 30 min LIVE listener Q&A)

 

 

Rod Densmore, MD

FASD & Transcending Caregiver Stress—Part 2
(49 mins and 30 min listener Q&A)

 

 

10:00 am PDT—Brenda McCreight, Ph.D.

30 Years of Learning: The Gift of Raising Children and Adults With FASD
(65 minutes)

 

 

2:00 pm PDT—Kim Barthel, OTR

Sensory Processing In Fetal Alcohol Spectrum Disorder
(58 mins and 30 min listener Q&A)

 

 

Dan Dubovsky

FASD & Multiple Mental Health Issues and the Risks of Misdiagnosis
(77 mins and 30 min LIVE listener Q&A)

 

 

Diane V. Malbin, MSW

FASD: What’s the Brain Got to do with it?
(70 minutes and 30 min listener Q&A)

 

 

10:00 am PDT—Brenda Knight & Erin Reimer-Mayzes

FASD: I was Really a Teenager Until I was 30
(72 minutes)

 

 

Susan Fleisher

My Child and the FASD Charity She Inspired: Finding the Balance
(64 mins and 30 min listener Q&A)

 

 

Simona Pichini, Ph.D.

FASD: Managing Conflict in the Home
(57 minutes)

 

 

Janet Christie

FASD: Insights from a Mother
(66 mins)

 

 

Marsha Wilson

FASD: Everybody, One Thing
(69 minutes)

 

 

 

 

Chelsea Dotchak

Growing Up With FASD
(67 minutes)

 

 

 

 

 

 

 

 

Erin Reimer-Mayzes

FASD: I Don’t Live in That Box
(61 minutes)

 

Special Series Finale—Grace Gerry, David Gerry,& Cheryl Sivertson

David Gerry david@LivingWithFASD.com +1 (250) 889-1429 Host of “Living With FASD” telesummit, Co-chair, Advisory Panel of HerWay Home, Former Executive Director of The FASD Community Circle

Then join host David Gerry and Cheryl Sivertson as we call this year’s summit to a close, recapping highlights from each speaker interview, along with some BONUS surprises (you’ve got to be on the call to find out what these are!). Tune in for:

A review of highlights and insights shared by our speakers;

Suggestions about how to systematically convert insights gained into actions;

AND some bonus surprises—you've got to be on the call to receive them!

 

Play the audio REPLAY of Grace Gerry’s interview and the FINALE event:

Play the audio and slideshow of Grace Gerry’s interview the FINALE event:
CLICK here to play audio and see slideshow

 

Join the conversation!

Join the “Living With FASD” Facebook group and post your comments and questions and find out what others are discussing!

Summit Participants Are Saying:

 

  • This teleseminar is EXCELLENT! I can’t wait to listen to more. I want you to know that you have organized a most valuable support for FASD parents. I have never gone to an FASD conference before. I always wished I could hear the guest speakers from the comfort of my own home. You have solved this conundrum. I can actually be in my own home, keeping an eye on my alcohol affected son, and feel reassured there are people out there that understand and “get it”. Thank you most sincerely.

    Nancy -

  • I would just like to express me warmest appreciation for the tele-summit you organized. I am learning so much! I am an Occupational Therapist working on a FASD prevention project in a small community in the middle of South Africa. I do plenty of training similar to Kim Barthel and found it so refreshing to hear her present the same information in a somewhat different way. All your other speakers have been very informative and will help me tremendously in my work. I really appreciate having access to this high quality training. Training in an area this remote always comes at a greater cost as it includes accommodation and traveling, so it is a real privilege to have it at the tips of my fingers. Thank you for taking the time and effort to put this together not only for my own enrichment but also for all our clients!

    Lian-Marie - Foundation For Alcohol Related Research, South Africa

  • I bought the package so I can listen to the interviews several times… the best money I have ever spent!

    Tim - Vancouver, Canada

  • Until today, seriously David, my wife and I felt “really” alone in fighting with these so-called authorities (both agencies and government) because of THEIR lack of understanding of FASD and ALL the challenges that we as foster parents experience. With all my heart, I thank the LORD and you David and the FASD group that we are finally not alone after listening to the second talk of the day. Suddenly, it dawned on me, there is a group out there that I can work with… Triple blessings to you and your group.

    Dr. Winfield, PhD -

  • Thank you so much for this summit. For the first time I feel hope as I raise my daughter with FASD. Since the diagnosis of FASD, I’ve asked myself so many questions: We have the diagnosis, so now what? What does this mean for our family and for our daughter living with FASD through the years? It feels like we’re always reacting and treating symptoms. I worry that the social and educational gaps will widen as she gets older. Is there ways to close those gaps? I think the most helpful part of this summit is the real life examples and practical parenting tips given by the presenters.

    Julia - New Jersey, USA

  • You know the expression, “When the student is ready, the teacher will appear.” I have my computer running with the presentation, and my laptop running so I can type and take notes. I have ordered the package of transcripts, etc. I just want to say thank you. The information has been unbelievable, and sometimes it is reassuring when I hear that the professional experts don’t exactly agree.

    Elaine - North Bay, Canada

  • This series is amazing and informative. Thanks for thinking of it and making it happen

    Lynette - Saskatoon, Canada

  • This was AWESOME! Thank you! I will be getting in contact with Dr. Claire Coles to find out how I can be trained. Oregon has very few resources for families/individuals dealing with FAS/FASD. Thank you SO MUCH!

    Carol Anthony, LPC - Salem, Oregon

  • I want to express my heartfelt thanks to you and everyone who is involved in the FASD Summit Conference. Thank you for all the hard work that has gone into this. The biggest thing is that I can listen to it without charge [48 hour replay]. I’ve already listened to one speaker and want to listen to Dr. Rod Densmore and others.

    Kevin -

  • These interviews are so awesome and tremendously helpful. Where have you all been. You are all my angels and saviors.

    Kimberly - Corinth, Mississippi

  • I have just listened to the session with Kim Barthel, which was music to my ears and makes so much sense about my nieces sensory problems and how to work with her. I am finding this conference so helpful in my understanding of my niece where FAS has been ruled out. Many thanks for putting this conference together.

    Chamomile - England

  • Thank you Cheryl, you are doing a AWESOME job. The Summit is excellent, a lot of good information. Due to 48 hour REPLAY, a lot more people are getting this information. Thank YOU to everyone involved in this Summit and to the people who are sharing their stories on the “Living With FASD” Facebook group. You are ALL angels.

    Patsy - Labrador, Canada

  • I would like to add my accolades for this Summit. I don’t live with FASD, but am the center manager for a Head Start program and have worked in early childhood education for 25 years. Our program uses the PBIS (positive behavior interventions and supports) which focuses on building relationships, then teaching social skills, and then developing plans as needed. The information I got from Diane Malbin many years ago (thinking about the brain first) is a perfect fit with PBIS. The ideas and information presented throughout this Summit has given me updates on research, and some practical intervention strategies I can share with my teachers to help ALL children be more successful in the preschool classroom. The Summit has also given me ways to work with our families to help them advocate for their child. Thank you so much!

    Julie - Washington, USA

 

FASD Quotes

 

  • FASD is what I have. It’s not who I am!

    Anonymous -

  • Mummy, at school, if I don’t learn the way they teach, why don’t they teach the way I learn?

    Charles, Age 9 -

  • After I told my daughter, “Keep your eyes peeled,” while we were driving to look for an address, she answered, “Mom, that would hurt!”

    Anonymous -

  • “You told me to brush my teeth, not to use toothpaste.”

    Anonymous -

  • Mother’s question to a child with FAS: “Why do you always talk out loud when no one is in the room?” Son’s answer: “I’m telling the one side of my brain to tell the other side what to do.”

    Anonymous -

  • “I don’t know why I got in so much trouble at school. All I did was set off a loud, fake firecracker in chapel.” (age 7)

    Anonymous -

  • “I didn’t steal it. Johnny did. I just took it from Johnny’s room.”

    Anonymous -

  • “”But Mom, they must be ‘nice’ people. They have animals.”

    Anonymous -

  • “I didn’t spill the coke, mommie. The can spilled the coke.”

    Anonymous -

  • When told that most people think about what they are going to say before they say it my daughter replied, “No one can do that. That’s impossible!”

    Anonymous -

  • “I did not take your make-up! You abandoned it in the bathroom.”

    Anonymous -

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